A special job for a brave little fighter this Christmas

Seven-year-old Nathan Soe was given the exclusive job of placing the final ornament on the Townsville University Hospital (TUH) Christmas tree to officially kick off the festive season. 

Nathan was born with a condition called beta thalassemia, an inherited blood disorder that affects his red blood cells. 

He was born prematurely weighing 2.4kg in a refugee camp on the border of Thailand and Myanmar.   

Nathan’s mum Mee LKar said before moving to Australia with his family at four years old, his health issues were unknown, but doctors were soon able to diagnose his condition and begin treatment. 

“Nathan visits the TUH paediatric oncology day unit once a month for an IV cannula and blood transfusions to manage his anaemia, and he has been receiving these monthly transfusions for the past three-and-a-half years,” Ms LKar said. 

“As well as these transfusions, he takes medication to manage his iron levels as too much iron can build up in his body due to the transfusions.” 

Nathan undergoes regular blood tests, check-ups with specialists, and follow-up care to ensure his health is well-managed. 

“Nathan's physical growth has been delayed compared to other children his age, but he is otherwise a normal, happy, and active boy,” Ms LKar said. 

“He loves being creative, especially drawing and playing with playdough. 

“Nathan also has a close bond with his little brother Arthur.” 

Mee said his family was incredibly grateful for the treatment that Nathan continues to receive at TUH. 

“Although Nathan’s health will require ongoing attention for the rest of his life, knowing that we have access to the wonderful clinical staff at TUH gives us a sense of peace.” 

Brighter Lives Fundraising and Communication Officer Kim Steele said the charity was looking forward to the annual Christmas tree event with special guests including the Choral Aires from the Townsville Choral Society, pianist Tony Hallo, and even Santa from Willows Shopping Centre joining the festive occasion. 

“Nathan will be the star of the day when he places the final ornament on the tree, and will even receive a special present from Santa,” she said. 

“Brighter Lives is proudly the official charity for Townsville Hospital and Health Service, covering a large region across north Queensland. 

“One hundred per cent of funds donated stay here in North Queensland and help local patients like Nathan.

 “The foundation funds projects that help brighten the hospital experience, from the big pieces of innovative equipment to the little things like colouring packs for kids. 

“We're so grateful for donations that make this all possible.”

 Townsville Hospital and Health Service Board Chair Tony Mooney said the health service was proud to partner with Brighter Lives who work tirelessly to bring joy to patients, especially children like Nathan.

“It’s a truly special time of year when the Christmas tree goes up, and we can begin sharing festive cheer with patients, families, and staff,” he said.

“What better way to kick off the Christmas celebrations than by honouring Nathan’s incredible strength and having him and his family here to place an ornament on the tree.

“Christmas is all about giving, and even a small donation can make a big difference for families facing the hardship of a hospital stay, allowing them to experience some joy this season.”